OR

Browse By

Dr Sarah Wallace

NHMRC Senior Research Fellow

School of Health and Rehabilitation Sciences
Faculty of Health and Behavioural Sciences
s.wallace3@uq.edu.au
+61 7 334 67453

Overview

Sarah conducts research in the field of aphasia rehabilitation.

Sarah is an NHMRC Emerging Leadership Fellow, a Lecturer in Speech Pathology, and a Certified Practising Speech Pathologist. She has 18 years of experience working as a clinician, public servant, and researcher in public health, federal government, and university sectors. Sarah has expertise in the area of outcome measurement, developed throughout her doctoral research project to develop a core outcome set for aphasia treatment research. Sarah’s research has an international focus and she is a founding member of Aphasia United, an international peak body for aphasia organisations. Sarah has expertise in consensus building techniques, stakeholder engagement and the application of the World Health Organisation International Classification of Functioning Disability and Health (ICF) to research.

Research Interests

  • Aphasia Rehabilitation
  • Core Outcome Set development
  • Consensus techniques and stakeholder engagement
  • Communication disability in ageing
  • The patient perspective
  • Outcome measurement

Qualifications

  • Doctor of Philosphy, The University of Queensland
  • Graduate Certificate in Gerontology, VIC
  • Bachelor of Speech Pathology, The University of Queensland

Publications

View all Publications

Grants

View all Grants

Supervision

  • Measuring Conversation in Aphasia: Development of an Outcome Measure

    Doctor Philosophy

  • Describing the delivery and outcomes of post-stroke aphasia rehabilitation in Australia using a minimum dataset

    Doctor Philosophy

  • Predicting and promoting aphasia recovery

    Doctor Philosophy

View all Supervision

Available Projects

  • Improving Conversations about Care through Experience-Based Co-Design.

    Communication difficulties are amongst the most common and devastating symptoms of dementia. Over time, a person with dementia may have trouble expressing their needs, wants, and feelings; limiting their ability to communicate choice, provide feedback, and raise concerns. People with dementia rely heavily on aged care services. The Royal Commission into Aged Care Quality and Safety has brought to light ‘shameful’ stories of sub-standard care, abuse, and neglect, and has highlighted widespread community dissatisfaction with a disempowering complaints system. This is particularly concerning for people with dementia who comprise more than half of aged care recipients, are at higher risk of abuse, and who may have difficulty communicating their concerns. No research has examined how people with dementia and associated communication disability can be supported to authentically engage with feedback and complaints mechanisms. This project will use experience-based co-design to develop a suite of resources that support people with dementia to provide feedback, raise complaints, and engage in important conversations about care. Across three phases of research, we will work in partnership with people with dementia, their families, carers, health professionals, and care managers to ensure that resources can be meaningfully and feasibly implemented in residential and community aged care settings.

  • What makes aphasia therapy satisfying? Development a patient-reported outcome measure of Experience and Satisfaction with Aphasia Therapy (ESAT)

    Background

    Patient experience and satisfaction with the care they have received is well established as a main criterion of quality in healthcare. Patient experience is linked to clinical effectiveness and clinical safety, including positive associations with self-rated and objectively measured health outcomes and adherence to recommended clinical practice. In the field of stroke and aphasia, patient satisfaction is also considered a key outcome. Stroke is the most common cause of adult disability in the western world. About 1/3 of people with stroke will have aphasia, a devastating communication impairment that affects all aspects of communication, including speaking, understanding what others say, reading and writing. A recent international research project explored the outcomes that are most important in aphasia therapy. Eighty aphasia researchers, 265 aphasia clinicians and 53 managers from 25 countries took part in an e-Delphi consensus exercise: patient-reported satisfaction with aphasia therapy was selected as one of the most important outcomes of treatment and clinical effectiveness research. In a linked international project, people with aphasia and their families identified outcomes relating to the quality of health services as essential in improving their lives with aphasia. This research by Wallace and her colleagues on the outcomes of most importance to people with aphasia, their families and aphasia clinicians and researchers led to the development of a Core Outcome Set (COS) for people with aphasia. A COS is a minimum set of outcomes that should be included in all clinical effectiveness studies. The inclusion of a minimum set of outcomes in effectiveness studies facilitates data aggregation and comparison across studies, allowing results to be used with maximum efficiency in systematic reviews and meta-analyses. The consensus work by Wallace et al. identified that the COS for aphasia should include a measure to assess patient satisfaction with aphasia therapy; yet no measure was identified for this outcome. The need to develop a patient-reported outcome measure of satisfaction with aphasia therapy was raised as a key research priority. This project addresses this need by undertaking the necessary theoretical work and consultation with people with aphasia to devela patient-reported outcome measure of Experience and Satisfaction with Aphasia Therapy (ESAT).

    Aims

    This project aims to better understand what makes therapy satisfying for people with post-stroke aphasia (language disability) and use this information to develop an outcome measure and inform clinical practice. There are three objectives:

    1. Synthesise the existing evidence on people with aphasia’s experience and satisfaction with aphasia therapy

    2. Explore people with aphasia’s views on satisfaction with therapy based on their expectations and experience

    3. Develop a patient-reported outcome measure of Experience and Satisfaction with Aphasia Therapy (ESAT).

    Supervisory team:

    Dr Sarah Wallace

    Professor Katerina Hilari (City, University of London)

    Dr Sarah Northcott (City, Univeristy of London)

View all Available Projects

Publications

Book Chapter

  • Aphasia in later life

    Worrall, Linda, Rose, Tanya, Brandenburg, Caitlin, Rohde, Alexia, Berg, Karianne and Wallace, Sarah J. (2016). Aphasia in later life. Encyclopedia of Geropsychology. (pp. 1-7) edited by A. N. Pachana. Singapore: Springer Singapore. doi: 10.1007/978-981-287-080-3_346-1

Journal Article

Conference Publication

Other Outputs

Grants (Administered at UQ)

PhD and MPhil Supervision

Current Supervision

  • Measuring Conversation in Aphasia: Development of an Outcome Measure

    Doctor Philosophy — Principal Advisor

  • Describing the delivery and outcomes of post-stroke aphasia rehabilitation in Australia using a minimum dataset

    Doctor Philosophy — Principal Advisor

    Other advisors:

  • Predicting and promoting aphasia recovery

    Doctor Philosophy — Principal Advisor

    Other advisors:

  • Assessing Cognitive Communication Disorders in the Paediatric Population following Traumatic Brain Injury

    Doctor Philosophy — Principal Advisor

    Other advisors:

  • International Aphasia Awareness Agenda - What outcomes do aphasia consumer organizations want from aphasia awareness and who are the target audiences?

    Doctor Philosophy — Principal Advisor

    Other advisors:

  • Aphasia Centre Science: Co-designing the Queensland Aphasia Rehabilitation Centre

    Doctor Philosophy — Principal Advisor

    Other advisors:

  • Health Care Service Experience, Satisfaction, and Feedback in Post-Stroke Aphasia Care: The Consumer-Provider Story

    Doctor Philosophy — Principal Advisor

  • How can we help people with aphasia return to driving following stroke?

    Doctor Philosophy — Principal Advisor

    Other advisors:

  • Technology enabled self management of aphasia: when, how and what works

    Doctor Philosophy — Associate Advisor

    Other advisors:

Possible Research Projects

Note for students: The possible research projects listed on this page may not be comprehensive or up to date. Always feel free to contact the staff for more information, and also with your own research ideas.

  • Improving Conversations about Care through Experience-Based Co-Design.

    Communication difficulties are amongst the most common and devastating symptoms of dementia. Over time, a person with dementia may have trouble expressing their needs, wants, and feelings; limiting their ability to communicate choice, provide feedback, and raise concerns. People with dementia rely heavily on aged care services. The Royal Commission into Aged Care Quality and Safety has brought to light ‘shameful’ stories of sub-standard care, abuse, and neglect, and has highlighted widespread community dissatisfaction with a disempowering complaints system. This is particularly concerning for people with dementia who comprise more than half of aged care recipients, are at higher risk of abuse, and who may have difficulty communicating their concerns. No research has examined how people with dementia and associated communication disability can be supported to authentically engage with feedback and complaints mechanisms. This project will use experience-based co-design to develop a suite of resources that support people with dementia to provide feedback, raise complaints, and engage in important conversations about care. Across three phases of research, we will work in partnership with people with dementia, their families, carers, health professionals, and care managers to ensure that resources can be meaningfully and feasibly implemented in residential and community aged care settings.

  • What makes aphasia therapy satisfying? Development a patient-reported outcome measure of Experience and Satisfaction with Aphasia Therapy (ESAT)

    Background

    Patient experience and satisfaction with the care they have received is well established as a main criterion of quality in healthcare. Patient experience is linked to clinical effectiveness and clinical safety, including positive associations with self-rated and objectively measured health outcomes and adherence to recommended clinical practice. In the field of stroke and aphasia, patient satisfaction is also considered a key outcome. Stroke is the most common cause of adult disability in the western world. About 1/3 of people with stroke will have aphasia, a devastating communication impairment that affects all aspects of communication, including speaking, understanding what others say, reading and writing. A recent international research project explored the outcomes that are most important in aphasia therapy. Eighty aphasia researchers, 265 aphasia clinicians and 53 managers from 25 countries took part in an e-Delphi consensus exercise: patient-reported satisfaction with aphasia therapy was selected as one of the most important outcomes of treatment and clinical effectiveness research. In a linked international project, people with aphasia and their families identified outcomes relating to the quality of health services as essential in improving their lives with aphasia. This research by Wallace and her colleagues on the outcomes of most importance to people with aphasia, their families and aphasia clinicians and researchers led to the development of a Core Outcome Set (COS) for people with aphasia. A COS is a minimum set of outcomes that should be included in all clinical effectiveness studies. The inclusion of a minimum set of outcomes in effectiveness studies facilitates data aggregation and comparison across studies, allowing results to be used with maximum efficiency in systematic reviews and meta-analyses. The consensus work by Wallace et al. identified that the COS for aphasia should include a measure to assess patient satisfaction with aphasia therapy; yet no measure was identified for this outcome. The need to develop a patient-reported outcome measure of satisfaction with aphasia therapy was raised as a key research priority. This project addresses this need by undertaking the necessary theoretical work and consultation with people with aphasia to devela patient-reported outcome measure of Experience and Satisfaction with Aphasia Therapy (ESAT).

    Aims

    This project aims to better understand what makes therapy satisfying for people with post-stroke aphasia (language disability) and use this information to develop an outcome measure and inform clinical practice. There are three objectives:

    1. Synthesise the existing evidence on people with aphasia’s experience and satisfaction with aphasia therapy

    2. Explore people with aphasia’s views on satisfaction with therapy based on their expectations and experience

    3. Develop a patient-reported outcome measure of Experience and Satisfaction with Aphasia Therapy (ESAT).

    Supervisory team:

    Dr Sarah Wallace

    Professor Katerina Hilari (City, University of London)

    Dr Sarah Northcott (City, Univeristy of London)

For Media assistance please contact The Office of Marketing and Communications, (07) 3365 1120

Links

ResearcherID: K-8381-2015

ORCID: 0000-0002-0600-9343

Scopus ID: 57154236000

Google Scholar ID:

Personal Profile: Link

Unit Links
Other Media
Social Media

Related Resources

Similar Staff
Researchers in Associated Units