The University of Queensland

Inclusion of people with aphasia in stroke trials: a systematic search and review

Shiggins, Ciara, Ryan, Brooke, Dewan, Farhana, Bernhardt, Julie, O'Halloran, Robyn, Power, Emma, Lindley, Richard I., McGurk, Gordon and Rose, Miranda L. (2023). Inclusion of people with aphasia in stroke trials: a systematic search and review. Archives of Physical Medicine and Rehabilitation. doi: 10.1016/j.apmr.2023.06.010

Screening Depression and Suicidality in Post Stroke Aphasia: A Theory of Planned Behaviour Study

Schlesinger, Hope, Shiggins, Ciara, Kneebone, Ian I., Broomfield, Niall M. and Ford, Catherine (2023). Screening Depression and Suicidality in Post Stroke Aphasia: A Theory of Planned Behaviour Study. Aphasiology, 1-22. doi: 10.1080/02687038.2023.2203801

Inclusion of adults with conditions that have the potential to affect capacity and or communication in research: triangulation from a mixed-methods study of current practice and values across multiple stakeholders

Killett, Anne, Langdon, Peter E, Ryan, Hayley, Shiggins, Ciara, Heywood, Rob, Jimoh, Oluseyi F, Redley, Marcus and Bunning, Karen (2023). Inclusion of adults with conditions that have the potential to affect capacity and or communication in research: triangulation from a mixed-methods study of current practice and values across multiple stakeholders. BMJ Open, 13 (4) e068366, 1-12. doi: 10.1136/bmjopen-2022-068366

Towards the consistent inclusion of people with aphasia in stroke research irrespective of discipline

Shiggins, Ciara, Ryan, Brooke, O'Halloran, Robyn, Power, Emma, Bernhardt, Julie, Lindley, Richard. I., McGurk, Gordon, Hankey, Graeme. J. and Rose, Miranda. L. (2022). Towards the consistent inclusion of people with aphasia in stroke research irrespective of discipline. Archives of Physical Medicine and Rehabilitation, 103 (11), 2256-2263. doi: 10.1016/j.apmr.2022.07.004

How are adults with capacity-affecting conditions and associated communication difficulties included in ethically sound research? A documentary-based survey of ethical review and recruitment processes under the research provisions of the Mental Capacity Act (2005) for England and Wales

Bunning, Karen, Jimoh, Oluseyi Florence, Heywood, Rob, Killett, Anne, Ryan, Hayley, Shiggins, Ciara and Langdon, Peter E. (2022). How are adults with capacity-affecting conditions and associated communication difficulties included in ethically sound research? A documentary-based survey of ethical review and recruitment processes under the research provisions of the Mental Capacity Act (2005) for England and Wales. BMJ Open, 12 (3) e059036, e059036. doi: 10.1136/bmjopen-2021-059036

Development of an “Aphasia-Accessible Participant in Research Experience Survey” through co-production

Shiggins, Ciara, Coe, Donna, Gilbert, Louise, Research Collaboration, Aphasia and Mares, Kathryn (2022). Development of an “Aphasia-Accessible Participant in Research Experience Survey” through co-production. Aphasiology, 1-34. doi: 10.1080/02687038.2021.1996532

Management of communication disability in the first 90 days after stroke: a scoping review

Baker, Caroline, Foster, Abby M., D'Souza, Sarah, Godecke, Erin, Shiggins, Ciara, Lamborn, Edwina, Lanyon, Lucette, Kneebone, Ian and Rose, Miranda L. (2021). Management of communication disability in the first 90 days after stroke: a scoping review. Disability and Rehabilitation, 44 (26), 1-15. doi: 10.1080/09638288.2021.2012843

A systematic review and narrative synthesis of the research provisions under the Mental Capacity Act (2005) in England and Wales: recruitment of adults with capacity and communication difficulties

Jimoh, Oluseyi Florence, Ryan, Hayley, Killett, Anne, Shiggins, Ciara, Langdon, Peter E., Heywood, Rob and Bunning, Karen (2021). A systematic review and narrative synthesis of the research provisions under the Mental Capacity Act (2005) in England and Wales: recruitment of adults with capacity and communication difficulties. PLoS One, 16 (9), e0256697. doi: 10.1371/journal.pone.0256697

A systematic review of non-drug interventions to prevent and treat anxiety in people with aphasia after stroke

Ryan, Brooke J., Clunne, Stephanie M., Baker, Caroline J., Shiggins, Ciara, Rose, Miranda L. and Kneebone, Ian I. (2021). A systematic review of non-drug interventions to prevent and treat anxiety in people with aphasia after stroke. Disability and Rehabilitation, 44 (18), 1-10. doi: 10.1080/09638288.2021.1925752

The ethics of patient and public involvement across the research process: towards partnership with people with aphasia

Hersh, Deborah, Israel, Mark and Shiggins, Ciara (2021). The ethics of patient and public involvement across the research process: towards partnership with people with aphasia. Aphasiology, 1-27. doi: 10.1080/02687038.2021.1896870

Inclusion under the Mental Capacity Act (2005): A review of research policy guidance and governance structures in England and Wales

Ryan, Hayley, Heywood, Rob, Jimoh, Oluseyi, Killett, Anne, Langdon, Peter E., Shiggins, Ciara and Bunning, Karen (2021). Inclusion under the Mental Capacity Act (2005): A review of research policy guidance and governance structures in England and Wales. Health Expectations, 24 (1), 152-164. doi: 10.1111/hex.13165

Towards an asset-based approach to promoting and sustaining well-being for people with aphasia and their families: an international exploratory study

Shiggins, Ciara, Soskolne, Varda, Olenik, Dafna, Pearl, Gill, Haaland-Johansen, Line, Isaksen, Jytte, Jagoe, Caroline, McMenamin, Ruth and Horton, Simon (2020). Towards an asset-based approach to promoting and sustaining well-being for people with aphasia and their families: an international exploratory study. Aphasiology, 34 (1), 70-101. doi: 10.1080/02687038.2018.1548690

Beyond the statistics: a research agenda in aphasia awareness

Simmons-Mackie, Nina, Worrall, Linda, Shiggins, Ciara, Isaksen, Jytte, McMenamin, Ruth, Rose, Tanya, Guo, Yiting Emily and Wallace, Sarah J. (2019). Beyond the statistics: a research agenda in aphasia awareness. Aphasiology, 34 (4), 458-471. doi: 10.1080/02687038.2019.1702847

Lost voices in research: Exposing the gaps in the Mental Capacity Act 2005

Heywood, Rob, Ryan, Hayley, Killett, Anne, Langdon, Peter, Plenderleith, Yvonne, Shiggins, Ciara and Bunning, Karen (2019). Lost voices in research: Exposing the gaps in the Mental Capacity Act 2005. Medical Law International, 19 (2-3), 81-112. doi: 10.1177/0968533219867365

Home-based, early rehabilitation after stroke: the perspectives of people with aphasia and healthcare professionals

Shiggins, Ciara and Horton, Simon (2018). Home-based, early rehabilitation after stroke: the perspectives of people with aphasia and healthcare professionals. Aphasiology, 32 (sup1), 203-205. doi: 10.1080/02687038.2018.1485869

Supporting communication for people with aphasia in stroke rehabilitation: transfer of training in a multidisciplinary stroke team

Horton, Simon, Lane, Kathleen and Shiggins, Ciara (2016). Supporting communication for people with aphasia in stroke rehabilitation: transfer of training in a multidisciplinary stroke team. Aphasiology, 30 (5), 629-656. doi: 10.1080/02687038.2014.1000819

Making research summaries accessible to people with aphasia following stroke: an international co-design study

Harvey, Sam, Cheng, Bonnie, Shiggins, Ciara, Ryan, Brooke, Tanya Rose, Palmer, Rebecca, Burton. Bridget, Worthy, Peter, Deslandes, Ryan, Kong, Anthony Pak-Hin, Breitenstein, Caterina, Soroli, Eva, Dutta, Manaswita, Martinez Ferreiro, Silvia, Alyahya, Reem, Pais, Analise, Shinton, Ray, Pernworth, Janis and Wallace, Sarah J. (2023). Making research summaries accessible to people with aphasia following stroke: an international co-design study. Stroke 2023 – The Combined Stroke Society of Australasia and Smart Strokes Nursing and Allied Health Scientific Meeting, Melbourne, Australia, 22-25 August 2023. London, United Kingdom: Sage Publications. doi: 10.1177/17474930231188838