Dr Kathy Ellem is a Senior Lecturer in the School of Nursing, Midwifery and Social Work at The University of Queensland, Australia. She has previously practiced as a social worker in both government and non-government sectors, working with children, young people and their families in disability and child protection services. As a social worker, she has been actively involved in casework; case management; behavioural intervention; group work; community development; and individual, citizen and systems advocacy. She has taken on family leadership roles in the disability sector, including her former role as President of Queensland Parents for People with a Disability. She is a member of the Queensland board of the Australasian Society for Intellectual Disability, and committee member of Queensland Advocacy Incorporated and Community Living Association.
Kathy completed her PhD in social work at the University of Queensland, researching the experiences of people with intellectual disability in the Queensland prison system. Her research expertise includes participatory research methodologies (including narrative, digital and arts-based research) with people with impaired cognitive capacity; the intersectionality of disability and the criminal justice system; disability workforce development; family-centred practice and capacity building of families who have a loved one with a disability; self-advocacy for people with an intellectual disability; and families who have been forced to relinquish care of their child with a disability. Her work focuses on how both teaching and research can influence positive change in social work practice and in the lives of vulnerable people.
Kathy currently leads the Honours research course for the Bachelor of Social Work (Hons) and supervises research higher degree students in the fields of disability, mental health and health.
Cherry, Michael, O’Dea, Paul, Ellem, Kathy and O’Connor, Morrie (2023). Abuse is everybody’s business. Commentary on “Two scandals: the death of Ann Marie Smith in Australia and the Whorlton Hall scandal in Britain” (Hough 2022). Research and Practice in Intellectual and Developmental Disabilities, ahead-of-print (ahead-of-print), 1-4. doi: 10.1080/23297018.2023.2170272
Journal Article: Building capacity to engage in co-produced research: reflections from a digital storytelling project
Harris, Paul, Ellem, Kathy, Gallagher, Hilary, Burgess, Ashley, Abson, Louise, Sunderland, Naomi and Name of self-advocacy group changed for publications purposes, The Queenslander Self-Advocates (2022). Building capacity to engage in co-produced research: reflections from a digital storytelling project. Disability & Society, 1-20. doi: 10.1080/09687599.2022.2138267
Venables, Jemma, Ellem, Kathy and Nathanson, Caitlin (2022). Finding out about the ARROS PLACE program: Supporting young people with cognitive disability and experiences of child protection &/or youth justice involvement. Brisbane, QLD Australia: The University of Queensland.
Evaluation of National Counselling and Referral Service Counselling within Correctional Centres
(2022–2023) Commonwealth Department of Social Services
Insights from people with lived experience of disability and the justice system
(2022–2023) Queensland Department of Justice and Attorney-General
(2021–2022) UQ Knowledge Exchange & Translation Fund
Towards Social Justice for the Hijra Community
Doctor Philosophy
Exploring patient-led recording for adults with Down syndrome and their social supports
Doctor Philosophy
Understanding the Recovery Journey of National Disability Insurance Scheme (NDIS) Participants with Psychosocial Disability: Implications for Social Work
Doctor Philosophy
Chui, Wing Hong and Ellem, Kathy (2017). Youth justice. Social work and human services best practice. (pp. 26-48) Annandale, N.S.W., Australia: Federation Press.
MacDonald, Sarah, Ellem, Kathy and Wilson, Jill (2016). Supporting young people with an intellectual disability transitioning from out-of-home care to adult life in Queensland, Australia. Young people transitioning from out-of-home care: international research, policy and practice. (pp. 45-69) edited by Philip Mendes and Pamela Snow. London, United Kingdom : Palgrave Macmillan. doi: 10.1057/978-1-137-55639-4_3
Cherry, Michael, O’Dea, Paul, Ellem, Kathy and O’Connor, Morrie (2023). Abuse is everybody’s business. Commentary on “Two scandals: the death of Ann Marie Smith in Australia and the Whorlton Hall scandal in Britain” (Hough 2022). Research and Practice in Intellectual and Developmental Disabilities, ahead-of-print (ahead-of-print), 1-4. doi: 10.1080/23297018.2023.2170272
Building capacity to engage in co-produced research: reflections from a digital storytelling project
Harris, Paul, Ellem, Kathy, Gallagher, Hilary, Burgess, Ashley, Abson, Louise, Sunderland, Naomi and Name of self-advocacy group changed for publications purposes, The Queenslander Self-Advocates (2022). Building capacity to engage in co-produced research: reflections from a digital storytelling project. Disability & Society, 1-20. doi: 10.1080/09687599.2022.2138267
Emerging from the shadows: Digital stories of self‐advocates with intellectual disabilities
Ellem, Kathy, Harris, Paul and Strnadová, Iva (2022). Emerging from the shadows: Digital stories of self‐advocates with intellectual disabilities. Journal of Policy and Practice in Intellectual Disabilities, 19 (4), 360-369. doi: 10.1111/jppi.12426
O’Dea, Paul, Cherry, Michael, Ellem, Kathy and O’Connor, Morrie (2022). If you don’t fight for it, you won’t get it. Commentary on “The National Disability Insurance Scheme: voices of adults with intellectual disability” (Lloyd et al., 2022). Research and Practice in Intellectual and Developmental Disabilities, 9 (1), 1-3. doi: 10.1080/23297018.2022.2055488
Smith-Merry, Jennifer, O'Donovan, Mary-Ann, Dew, Angela, Hemsley, Bronwyn, Imms, Christine, Carey, Gemma, Darcy, Simon, Ellem, Kathy, Gallego, Gisselle, Gilroy, John, Guastella, Adam, Marella, Manjula, McVilly, Keith and Plumb, Jenny (2022). The future of disability research in Australia: protocol for a multi-phase research agenda-setting exercise. JMIR Research Protocols, 11 (1) e31126, e31126. doi: 10.2196/31126
Ellem, Kathy, Smith, Louisa, Baidawi, Susan, McGhee, Adrienne and Dowse, Leanne (2020). Transcending the professional–client divide: supporting young people with complex support needs through transitions. Child and Adolescent Social Work Journal, 37 (2), 109-122. doi: 10.1007/s10560-020-00651-x
Ellem, Kathy (2020). Commentary on “Community practitioners supporting young men with borderline intellectual functioning in the criminal justice system: capability for voice and agency” (Catalano, 2019). Research and Practice in Intellectual and Developmental Disabilities, 7 (1), 49-53. doi: 10.1080/23297018.2019.1683759
Ellem, Kathy (2019). Supporting people with cognitive disabilities in contact with the criminal justice system: the importance of relationship-based practice. Research and Practice in Intellectual and Developmental Disabilities, 6 (2), 1-14. doi: 10.1080/23297018.2019.1629332
Ellem, Kathy, Baidawi, Susan, Dowse, Leanne and Smith, Louisa (2019). Services to young people with complex support needs in rural and regional Australia: beyond a metro-centric response. Children and Youth Services Review, 99, 97-106. doi: 10.1016/j.childyouth.2019.01.033
Police contact with young people with cognitive disabilities: perceptions of procedural (in)justice
Ellem, Kathy and Richards, Kelly (2018). Police contact with young people with cognitive disabilities: perceptions of procedural (in)justice. Youth Justice, 18 (3), 147322541879435-247. doi: 10.1177/1473225418794357
Choosing the harder road: naming the challenges for families in person-centred planning
Ellem, Kathy, Chenoweth, Lesley and Edwards, Ruth (2018). Choosing the harder road: naming the challenges for families in person-centred planning. Journal of Intellectual Disabilities, 23 (3), 174462951878415-412. doi: 10.1177/1744629518784154
Richards, Kelly and Ellem, Kathy (2018). Young people with cognitive disabilities and over-representation in the criminal justice system: Service provider perspectives on policing. Police Practice and Research: An International Journal, 20 (2), 156-171 . doi: 10.1080/15614263.2018.1473771
Disability and transition from state education to community life: Next steps for parents
Wills, Rod , Chenoweth, Lesley and Ellem, Kathy (2016). Disability and transition from state education to community life: Next steps for parents. International Journal of Inclusive Education, 20 (5), 552-567. doi: 10.1080/13603116.2015.1095252
Doing qualitative research in social work
Ellem, Kathy (2015). Doing qualitative research in social work. Australian Social Work, 68 (3), 402-403. doi: 10.1080/0312407X.2015.1024190
When Families Relinquish Care of a Child with a Disability: Perceptions from Birthmothers
Ellem, Kathleen, Wilson, Jill and Chenoweth, Lesley (2015). When Families Relinquish Care of a Child with a Disability: Perceptions from Birthmothers. Australian Social Work, 69 (1), 39-50. doi: 10.1080/0312407X.2015.1015039
Sunderland, Naomi , Chenoweth, Lesley , Matthews, Nicole and Ellem, Kathy (2015). 1000 voices: Reflective online multimodal narrative inquiry as a research methodology for disability research. Qualitative Social Work, 14 (1), 48-64. doi: 10.1177/1473325014523818
Crafting and retelling everyday lives - Disabled people's contribution to bioethical concerns
Matthews, Nicole, Ellem, Kathy and Chenoweth, Lesley I. (2013). Crafting and retelling everyday lives - Disabled people's contribution to bioethical concerns. Narrative inquiry in bioethics: A journal of qualitative research, 3 (3), 235-240. doi: 10.1353/nib.2013.0074
1000 voices: an online public collection of life stories
Chenoweth, Lesley and Ellem, Kathy (2013). 1000 voices: an online public collection of life stories. Interaction: the Australian magazine on intellectual disability, 26 (4), 30-33.
Ellem, Kathy, O'Connor, Morrie, Wilson, Jill and Williams, Sue (2013). Social work with marginalised people who have a mild or borderline intellectual disability: practicing gentleness and encouraging hope. Australian Social Work, 66 (1), 56-71. doi: 10.1080/0312407X.2012.710244
Anna's story of life in prison
Boodle, Anna, Ellem, Kathy and Chenoweth, Lesley (2013). Anna's story of life in prison. British Journal of Learning Disabilities, 42 (2), 117-124. doi: 10.1111/bld.12015
Experiences of leaving prison for people with intellectual disability
Ellem, Kathy (2012). Experiences of leaving prison for people with intellectual disability. Journal of Intellectual Disabilities and Offending Behaviour, 3 (3), 127-138. doi: 10.1108/20420921211305873
Ellem, Kathy, Wilson, Jill and Chui, Wing Hong (2012). Effective responses to offenders with intellectual disabilities: Generalist and specialist services working together. Australian Social Work, 65 (3), 398-412. doi: 10.1080/0312407X.2011.625433
Ellem, Kathy, Wilson, Jill, O'Connor, Morrie and Macdonald, Sarah (2012). Supporting young people with mild/borderline intellectual disability exiting state out-of-home care: directions for practice. Developing Practice, 32, 53-65.
Ellem, Kathleen Alicia and Wilson, Jill (2010). Life story work and social work practice: A case study with ex-prisoners labelled as having an intellectual disability. Australian Social Work, 63 (1), 67-82. doi: 10.1080/03124070903464285
Ethical challenges of life story research with ex-prisoners with intellectual disability
Ellem, Kathleen, Wilson, Jill, Chui, Wing Hong and Knox, Marie (2008). Ethical challenges of life story research with ex-prisoners with intellectual disability. Disability and Society, 23 (5), 497-509. doi: 10.1080/09687590802177064
Undergraduate students with caregiving responsibilities relying on substance use to cope with stress
Jauncey-Cooke, J., Ellem, K., Peacock, A., Hawley, G., Drayton, J. and Le Brocque, R. (2021). Undergraduate students with caregiving responsibilities relying on substance use to cope with stress. Higher Education Research and Development Society of Australasia, Brisbane, QLD Australia, 8-10 July 2021.
Venables, J. and Ellem, K. (2019). Preparing social work students for research: Using student perceptions of their research knowledge, confidence and preparedness to inform curriculum design. Australia and New Zealand Social Work and Welfare Education and Research Conference, Perth, WA, Australia, 3-4th October 2019.
Venables, Jemma, Ellem, Kathy and Nathanson, Caitlin (2022). Finding out about the ARROS PLACE program: Supporting young people with cognitive disability and experiences of child protection &/or youth justice involvement. Brisbane, QLD Australia: The University of Queensland.
Mapping disability research in Australia
Smith-Merry, J., Gallego, G., Yen, I., Imms, C., Dew, A. and Research Agenda Consortium (2021). Mapping disability research in Australia. Sydney, NSW, Australia: The University of Sydney.
Life Stories of Ex-Prisoners with Intellectual Disability in Queensland
Ellem, Kathleen (2010). Life Stories of Ex-Prisoners with Intellectual Disability in Queensland. PhD Thesis, School of Social Work and Human Services, The University of Queensland.
Evaluation of National Counselling and Referral Service Counselling within Correctional Centres
(2022–2023) Commonwealth Department of Social Services
Insights from people with lived experience of disability and the justice system
(2022–2023) Queensland Department of Justice and Attorney-General
(2021–2022) UQ Knowledge Exchange & Translation Fund
(2021–2022) Community Living Association Inc
National Disability Research Agenda
(2021–2022) University of Sydney
Police Responses to People with Disability ¿ A Report for the Disability Royal Commission
(2021) University of New South Wales
(2021) The Royal Commission into Violence, Abuse, Neglect and Exploitation of People with Disability (referred to as the Disability Royal Commission)
NDIS Commission's Worker Screening Literature Review and Evaluation Framework
(2019) NDIS Quality and Safeguards Commission
(2018–2019) University of New South Wales
ResTeach 2011 0.2 FTE School of Social Work and Human Services
(2011) UQ ResTeach
UnitedCare Postdoctoral Fellowship
(2010–2012) UnitingCare Queensland
Towards Social Justice for the Hijra Community
Doctor Philosophy — Principal Advisor
Other advisors:
Exploring patient-led recording for adults with Down syndrome and their social supports
Doctor Philosophy — Principal Advisor
Other advisors:
Understanding the Recovery Journey of National Disability Insurance Scheme (NDIS) Participants with Psychosocial Disability: Implications for Social Work
Doctor Philosophy — Principal Advisor
Other advisors:
Normalising Ability Diversity through Career Transitions: Disability at Work
Doctor Philosophy — Associate Advisor
Other advisors: